Become a CHD Champion
Turn your experience into action
Your voice can help move congenital heart disease higher on the national agenda.
By joining the Every 100th Heart CHD Champions Network, you’ll become part of a nationwide community of patients, families, clinicians, and advocates working together to create meaningful policy change. No previous experience is required.
What You’ll Do
As a CHD Champion, you’ll have opportunities to:
Build relationships with lawmakers and congressional staff to advance Every 100th Heart’s policy priorities.
Organize, lead, and participate in advocacy events and meetings at both the state and national level.
Serve as a state and regional leader during future Every 100th Heart Advocacy Summits, state-level advocacy events, and congressional meetings.
Raise awareness for the CHD community by serving as a spokesperson for Every 100th Heart and participating in media opportunities, as desired.
Help recruit and encourage other advocates to raise their voices in support of the CHD community.
Participate in webinars and trainings to build your advocacy, policy, and media engagement skills.
Receive real-time advocacy updates and opportunities to take action throughout the year.
Who should apply?
We’re looking for people who are:
What to Expect
Training and Support
Every CHD Champion receives ongoing support throughout the year, including:
- Advocacy tools and resources
- Policy and media training
- Talking points and message guidance
- Opportunities to practice and build confidence
- Direct support from the Every 100th Heart team
Time Commitment
Most Champions spend approximately 2–3 hours per month participating in trainings, outreach, and advocacy activities.
Additional opportunities may be available throughout the year, but participation is flexible and based on your interest and availability.
Apply today
Applications for the inaugural CHD Champions Network are open through August 14, 2026.
Questions? Contact Madelyn Helmus at madelyn.helmus@curastrategies.com